Matty's home!!!!

[Tyburn]

i'm glad to hear this news

very good news indeed.

He's doing well with his dialysis, and the big change in his diet. So many things he can't have. He's restricted to 600 ml of fluid a day, as wel as low sodium/phosphorous/potassium. No junk food!!!! (well, when he's actually IN dialysis he can have junky stuff)

Right now he is staying with his dad most of the time as I can't get him to the hospital during the day because of my job. Dad works nights so it works out.

And tomorrow (3-27-09) is Matt's 8th birthday I took the day off and will hang out with him at the hospital. We are going to have chinese since he will be on dialysis and they'll filter all that oogy stuff right out of his blood!

I haven't been tested for compatibility yet, but I'm the first option for a kidney. If I'm not a match he will go on the list. He may also need a liver. His kidney disease caused hepatic fibrosis and can impair function. He has an appt on 4-8 to see the liver specialist. *cross fingers*

I want to thank you all again and again and again for your good wishes, your warm thoughts and most especially your prayers. It makes a difference every day. Thank you

Originally Posted by dawner1969

He's doing well with his dialysis, and the big change in his diet. So many things he can't have. He's restricted to 600 ml of fluid a day, as wel as low sodium/phosphorous/potassium. No junk food!!!! (well, when he's actually IN dialysis he can have junky stuff)

Right now he is staying with his dad most of the time as I can't get him to the hospital during the day because of my job. Dad works nights so it works out.

And tomorrow (3-27-09) is Matt's 8th birthday I took the day off and will hang out with him at the hospital. We are going to have chinese since he will be on dialysis and they'll filter all that oogy stuff right out of his blood!

I haven't been tested for compatibility yet, but I'm the first option for a kidney. If I'm not a match he will go on the list. He may also need a liver. His kidney disease caused hepatic fibrosis and can impair function. He has an appt on 4-8 to see the liver specialist. *cross fingers*

I want to thank you all again and again and again for your good wishes, your warm thoughts and most especially your prayers. It makes a difference every day. Thank you

How do you get tested?

[Llamafighter]

Originally Posted by Chuck

How do you get tested?

That's a good question.
and let us know how things go with the liver specialist.

Originally Posted by Chuck

How do you get tested?

You know, I'm not really sure. I know they have transplant regions for listing. In our area the agency we deal with is Midamerica Transplant Services. I would imagine you could contact your local agency and they could tell you.

Originally Posted by dawner1969

He's doing well with his dialysis, and the big change in his diet. So many things he can't have. He's restricted to 600 ml of fluid a day, as wel as low sodium/phosphorous/potassium. No junk food!!!! (well, when he's actually IN dialysis he can have junky stuff)

Right now he is staying with his dad most of the time as I can't get him to the hospital during the day because of my job. Dad works nights so it works out.

And tomorrow (3-27-09) is Matt's 8th birthday I took the day off and will hang out with him at the hospital. We are going to have chinese since he will be on dialysis and they'll filter all that oogy stuff right out of his blood!

I haven't been tested for compatibility yet, but I'm the first option for a kidney. If I'm not a match he will go on the list. He may also need a liver. His kidney disease caused hepatic fibrosis and can impair function. He has an appt on 4-8 to see the liver specialist. *cross fingers*

I want to thank you all again and again and again for your good wishes, your warm thoughts and most especially your prayers. It makes a difference every day. Thank you

Happy 8th Birthday Matt!!!! Hope you enjoy your chinese food and your story of bravery is truly inspiring.. xoxo

Hey Dawn, that certainly is really encouraging news I'm really proud of you and your family and Matty for the inspiration you have shown us. I'm going to share this story with my family--the stories of survival from regular Americans from here and overseas really does help me see the big picture of life.

Happy Bday to Matty too (8 is my fave number ) and I'll continue to keep you guys in my prayers.

Love yall

[Llamafighter]

I totally forgot to say...

Happy 8th Birthday Matty!

[Bonnie]

HAPPY 8th BIRTHDAY MATTY!!!!